Friday, October 20, 2006

So the tubes all came out

Jared is sooooooooooooooooooooooooooooo happy to have his Monty. He rushes to go pee now. He's still leaking out of the stoma at night, but as his bladder stretches more and more over time. Irrigating his bladder is so easy too. We are getting less and less mucus and pretty soon a few times a day will becime once a day then a few times a week. I owe the supply company some money so we have to make due with the supplies we have until I get it paid. Luckily Robby found out he has a flex account with enough money to pretty much pay it off. Hopefully the card will come tomorrow so I can call them and get it taken care of. If not off to Shriners I go. His new wheels are here in town, but still in a million pieces. The lady I spoke to said call next week it should be done. He will be so thrilled!!!
My Megan was having troubles then she stopped and yesterday she had to go to the prinicpal's office. It was her 5th write up. No behavior party today. It was something simple, but escalated into her being pissed off. The breaking point was when she snatched her water bottle out of her teacher's hand. She had to stay in her room all day yesterday and hopefully things will be back to normal today. She is such a good girl, but things can get ugly fast. If she doesn't get her anger under control she can take part in the school's anger group session. She found a tea set my Memaw gave her one year for Christmas and she just loves it. It's been set up on the table for days now. I love her so much it hurts me to see her act like me when she's angry.

Monday, October 09, 2006

Tomorrow is the magic day

The day when the tubes come out of my son. He's had them for over 3 weeks now. They were supposed to come out on Friday, but his doctor wasn't there so we were rescheduled. I was okay with it, they paid for my parking. He is so ready to go back to school. I am ready for him to too. He is going through some cry everytime mom touches my tape thing. He never cried in the hospital after having his entire lower half cut open, but he will cry for a tiny piece of tape. I have done all of his care since we've been home so I'm going through something too. Robby did drain his pee bag 2x and put Jared's undies on tonight. I have been sick since Friday night. I told Robby to get something we could just toss in the oven for dinner and he brings home a lasagna that cooks for 2 hours. Megan is having a quesidilla tonight. I am having my second drink any minute. My poor nose is so clogged. Mom and I had it out today. I told her that I was tired of her turning everything into something about her. ATTENTION WHORE is what she is. She left for the night or a few. I told her I am all out of sympathy for her right now. My son has tubes coming out of his bladder and colon and that's all I care about right now.